Director – Chris Petit, Emma Mathews – 2025 – Finland – Cert. 12A – 88m
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A diary film about a boy with epilepsy, his interior world, and parenting – out in UK cinemas on Friday, April 3rd
Opening and closing, more or less, with one of the quieter themes from Once Upon a Time in the West (Sergio Leone, composer: Ennio Morricone, 1968), and images first of a boy / young man clambering over coastal rocks and finally of the same young man and his father looking out from atop rock formations near “the top of the world”, this fits into the personal diary school of documentary filmmaking.
The two co-directors are life partners Chris Petit (Radio On, 1979) and Emma Matthews; the subject their son Louis, who started having epileptic fits around age 12. Following various NHS misdiagnoses, the family moved to the Netherlands where they could legally get hold of medical cannabis which, it turned out, cured Louis as long as he kept taking it.
In former times, notes the unseen narrator (Jodhi May from Dune: Prophecy, TV series, 2024; The Last of the Mohicans, Michael Mann, 1992, A World Apart, Chris Menges, 1988), people with this condition would be taken as demon-possessed and burned at the stake, or (under the Nazis) forcibly exterminated.… Read the rest